DePICTrb 489 336 P3G2

DePICTRB is designed to be a language-independent visual summary of retinoblastoma care information, accessible to the members of the patient’s circle of care, as well as to the patient and his or her family. P3G2 assisted DePICTRB in the refinement of its “Database Governance” framework. More specifically, through this work, P3G2 supported DePICTRB in developing its overall governance structure, which can be presented to participating sites. P3G2 also led the development of certain ethics-related policies such as the consent forms; privacy policy; data access policy; data sharing agreement; contributor agreement; code of ethics/conduct; publication policy.